Incurably Extraordinary

Living a Balanced Life with Chronic Illness

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    I’m Back

    April 11, 2026 /

    It has been about 18 months since I have posted anything new. The last year and a half have been a real journey. I had 4 surgeries in less than a year. Both my knees have been partially replaced and I had my big toe on my right foot fused. The surprise surgery was a diagnostic lumpectomy. Thankfully the cyst in my right breast was found to be non-cancerous. All of these surgeries in such a short time took a toll on my body. I just had no energy to do anything other than exist and try and maintain movement and eat health. I am still dealing with all the…

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    Welcome

    February 18, 2024 /

    Thank you for checking out my blog. My name is Tina, and I am a wife, mother, sister, friend, crafter, Child and Youth Worker and Chronic Illness Warrior. I have Seronegative Spondyloarthropathy (AS, PsA), Hypermobility Spectrum Disorder, P.O.T.S., High Blood Pressure, PTSD, and Fibromyalgia. This blog is about my experience, research and healing.

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Welcome

Thank you for checking out my blog. My name is Tina, and I am a wife, mother, sister, friend, crafter, Child and Youth Worker and Chronic Illness Warrior. My hope for this blog is to help others, who like me, who are trying to live their best lives while dealing with chronic illness. I want to share my success, failure, finds and explorations. Navigating life with a chronic illness is a difficult journey. People do not see what lies underneath the façade that you and I present to the world.

Categories

  • About Me
  • ACEs
  • Coping with Chronic Illness
  • Fibromyalgia
  • Grief
  • Hypermobility Spectrum Disorder
  • POTS
  • PTSD
  • Sleep
  • Spondyloarthropathy
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  • I’m Back
  • Welcome
  • EMDR and Its Use in Trauma Recovery
  • What is Pacing When You Have a Chronic Illness
  • What’s Going on Now? -Fibromyalgia!
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