• Fibromyalgia

    What’s Going on Now? -Fibromyalgia!

    Just a few months ago I had my regular six month check up with my rheumatologist. I am feeling pretty crumby. Lots of joint pain, worsening fatigue and more difficulty with sleep. I figured I was experiencing a Spondyloarthritis flare. She conducts a physical and sees only one swollen joint. She feels like…

  • Spondyloarthropathy

    Seronegative Spondyloarthropathy

    Seronegative Spondyloarthropathy (SpA) is a group of diseases that affect the joints. Ankylosing Spondylitis, Psoriatic Arthritis, Reactive Arthritis, Juvenile Arthritis, and Inflammatory Bowel Disease all belong to this class of inflammatory arthritis. This is an autoimmune disease. The immune system of an infected person attacks their cells. SpA affects the spine but can…

  • Grief

    Grief and Chronic Illness

    When we think of grief, we associate it with losing someone we love.  Grief is the feeling associated with loss.  Grief for the chronic illness community is the loss of functioning, relationships, and work or career. The Seven Stages of Grief Dr. Jennifer Martin updated the stages of grief for chronic illness. These…

  • Uncategorized

    I’m Back

    It has been about 18 months since I have posted anything new. The last year and a half have been a real journey. I had 4 surgeries in less than a year. Both my knees have been partially replaced and I had my big toe on my right foot fused. The surprise surgery…

  • Uncategorized

    Welcome

    Thank you for checking out my blog. My name is Tina, and I am a wife, mother, sister, friend, crafter, Child and Youth Worker and Chronic Illness Warrior. I have Seronegative Spondyloarthropathy (AS, PsA), Hypermobility Spectrum Disorder, P.O.T.S., High Blood Pressure, PTSD, and Fibromyalgia. This blog is about my experience, research and healing.