Incurably Extraordinary

Living a Balanced Life with Chronic Illness

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  • Fibromyalgia

    What’s Going on Now? -Fibromyalgia!

    May 17, 2023 /

    Just a few months ago I had my regular six month check up with my rheumatologist. I am feeling pretty crumby. Lots of joint pain, worsening fatigue and more difficulty with sleep. I figured I was experiencing a Spondyloarthritis flare. She conducts a physical and sees only one swollen joint. She feels like this is Fibromyalgia. Fibromyalgia can accompany Spondyloarthritis and Hypermobility Spectrum Disorder. All three of these diseases cause pain. I feel betrayed again by my body. What is Fibromyalgia? It is a chronic long-term condition that causes pain, fatigue and sleep disturbances. The brain is sending out abnormal pain signals. Pain is amplified. It can occur with other…

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  • Fibromyalgia

    Brain Fog and Chronic Illness

    April 30, 2023 /

    Brain Fog is feeling like you are not even part of your own body. Dealing with a chronic illness is hard in and of itself then add the brain fog!

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Welcome

Thank you for checking out my blog. My name is Tina, and I am a wife, mother, sister, friend, crafter, Child and Youth Worker and Chronic Illness Warrior. My hope for this blog is to help others, who like me, who are trying to live their best lives while dealing with chronic illness. I want to share my success, failure, finds and explorations. Navigating life with a chronic illness is a difficult journey. People do not see what lies underneath the façade that you and I present to the world.

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  • What is Pacing When You Have a Chronic Illness
  • What’s Going on Now? -Fibromyalgia!
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