Incurably Extraordinary

Living a Balanced Life with Chronic Illness

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  • PTSD

    EMDR and Its Use in Trauma Recovery

    July 29, 2023 /

    What is EMDR

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  • Coping with Chronic Illness

    What is Pacing When You Have a Chronic Illness

    June 19, 2023 /

    Illustration of the Chronic Pain Push Through Cycle

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  • Fibromyalgia

    What’s Going on Now? -Fibromyalgia!

    May 17, 2023 /

    Just a few months ago I had my regular six month check up with my rheumatologist. I am feeling pretty crumby. Lots of joint pain, worsening fatigue and more difficulty with sleep. I figured I was experiencing a Spondyloarthritis flare. She conducts a physical and sees only one swollen joint. She feels like…

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  • PTSD

    Transgenerational Trauma-My Mother’s Story

    May 14, 2023 /

    Transgenerational Trauma and its effect on generations

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  • Spondyloarthropathy

    Seronegative Spondyloarthropathy

    May 8, 2023 /

    Seronegative Spondyloarthropathy (SpA) is a group of diseases that affect the joints. Ankylosing Spondylitis, Psoriatic Arthritis, Reactive Arthritis, Juvenile Arthritis, and Inflammatory Bowel Disease all belong to this class of inflammatory arthritis. This is an autoimmune disease. The immune system of an infected person attacks their cells. SpA affects the spine but can…

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  • Fibromyalgia

    Brain Fog and Chronic Illness

    April 30, 2023 /

    Brain Fog is feeling like you are not even part of your own body. Dealing with a chronic illness is hard in and of itself then add the brain fog!

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  • Sleep

    10 Ways to Sleep Better with Chronic Illness

    April 13, 2023 /

    10 ways to sleep better with a chronic illness.

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  • Grief

    Grief and Chronic Illness

    April 7, 2023 /

    When we think of grief, we associate it with losing someone we love.  Grief is the feeling associated with loss.  Grief for the chronic illness community is the loss of functioning, relationships, and work or career. The Seven Stages of Grief Dr. Jennifer Martin updated the stages of grief for chronic illness. These…

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  • Uncategorized

    Welcome

    February 18, 2024 /

    Thank you for checking out my blog. My name is Tina, and I am a wife, mother, sister, friend, crafter, Child and Youth Worker and Chronic Illness Warrior. I have Seronegative Spondyloarthropathy (AS, PsA), Hypermobility Spectrum Disorder, P.O.T.S., High Blood Pressure, PTSD, and Fibromyalgia. This blog is about my experience, research and healing.

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  • POTS

    The Dizzy, Can’t Stand for Long, Fidgety One

    April 25, 2023 /

    What is POTS. It is a disorder of the autonomic nervous system. It can cause syncope, anxiety, chronic fatigue, sleep disturbances, fear, dizziness, weakness, and bloating. People with POTS experience dizziness when changing position from sitting to standing.

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Welcome

Thank you for checking out my blog. My name is Tina, and I am a wife, mother, sister, friend, crafter, Child and Youth Worker and Chronic Illness Warrior. My hope for this blog is to help others, who like me, who are trying to live their best lives while dealing with chronic illness. I want to share my success, failure, finds and explorations. Navigating life with a chronic illness is a difficult journey. People do not see what lies underneath the façade that you and I present to the world.

Categories

  • About Me
  • ACEs
  • Coping with Chronic Illness
  • Fibromyalgia
  • Grief
  • Hypermobility Spectrum Disorder
  • POTS
  • PTSD
  • Sleep
  • Spondyloarthropathy
  • Uncategorized

Recent Posts

  • Welcome
  • EMDR and Its Use in Trauma Recovery
  • What is Pacing When You Have a Chronic Illness
  • What’s Going on Now? -Fibromyalgia!
  • Transgenerational Trauma-My Mother’s Story
  • Privacy Policy
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